Read our latest blog posts here.
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The Ups and Downs of Simon’s first trip to Nemours
Early in Simon’s journey with Morquio syndrome, we learned that the global hub for research and orthopedic treatment is at Nemours Children’s Hospital in Wilmington, Delaware.
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Infusions, infusions and more infusions!
As of April 2023, Simon has had over 130 enzyme infusions and when I do the quick math, that’s almost 1000 hours of his life!
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Why CureMPS?
My first blog – oh my! As I start to exercise my creative writing muscles after what feels like decades of downtime, I’m looking forward to seeing where this journey takes us.
Learn more
Read our story about MPS Type 4A
and how it has changed our lives.
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